DURBAN-- Dr. Peter Piot has
learned that it is impossible to fight the AIDS
epidemic, without also fighting discrimination
and bias. The director of the Unaids program
spoke to Conference News Daily after a panel
discussion at which he highlighted the legislative
and grassroots work his organization has done
to help end the stigma surrounding the disease.
"We've
learned the hard way that it's impossible to have a
sustainable impact on the AIDS epidemic without fighting
stigma and discrimination," said Dr. Piot. "And
the reasons for that are that as long as stigma and
discrimination persist, people will be more vulnerable
to becoming infected because why would they come out,
when there's discrimination? Why would you go for a
test if all that's at the end of positive test is you
lose your job, you lose your house?"
This is why Unaids has a program with the International
Parliamentary Union to help countries introduce
basic anti-discrimination laws. At the panel Dr.
Piot was flanked by two women, one South African
and one Indian who spoke about the problems of
discrimination in their countries. They both illustrated
that, while passing laws is an important first
step in fighting stigma, educating populations
at a grassroots level is equally important.
Mercy Makhalemele
was diagnosed with AIDS nine years ago. She lives
in Soweto with her 12-year
old son. "I dealt with racism and discrimination.
Back when I was diagnosed I was working for a very
big company. I was dismissed from my work," she
said, adding an apology that it was still hard
to get used to talking about it even after all
her years working as an AIDS educator. "Two
days before that my husband threw me out of my
house. I was physically abused and a few days after
that I began engaging myself in an AIDS education
organization and I've seen that happening with
almost every woman that I meet."
Piot underlined the fact that not many countries
are even as advanced as Africa in viewing racism
and discrimination as a punishable crime. But,
he said, much work remained to be done in seeing
countries not only pass laws, but also implement
them.
"There is more work to be done in educating
people, because at the end of the day it's all
good and nice to have these documents and laws
but if the people who need to benefit out of them
don't know or understand, it's not going to happen," said
Makhalemele.
India has this
kind of anti-discrimination law, but, just as
in South Africa, it is hard to educate
the victims of discrimination on their rights. "The
most blatant forms of racism and discrimination
experiences by HIV-positive people were reported
in the hospitals both private and public," said
Dr. Shalini Bharat, speaking of a study done in
Mumbai (formerly known as Bombay) in 1998-1999.
According to Dr.
Bharat, the study covered: "Denial
of adequate care and treatment on the grounds of
HIV status, refusal to touch HIV patients during
routine examinations, mandatory HIV-testing for
patients going into surgery and for pregnant women.
Lack of respect for confidentiality of patients'
HIV status, deferential care practices for HIV-positive
patients, and negative attitudes of the staff are
some of the forms of discrimination in the hospitals.
The information collected help launch several law
suits on behalf of some of the victims."
Dr. Piot pointed
out that, "We have cases
that lawyers collected in Mumbai, cases of discrimination
against people because they have HIV. And because
of that citing examples in juris prudence is really
going to make a difference." But some patients
are beyond the help a lawsuit could provide.
"Discrimination however doesn't end during
a patient's life time," said Dr. Bharat. "Selectively
wrapping the bodies of HIV patients in plastic
sheets, and denying them the customary death rituals
completes their stigmatization after death."
Some of the poorest countries in the world are
also home to some of the largest HIV-positive populations.
While Unaids helps countries battle the disease,
a more general pattern of discrimination can be
noticed.
"Unaids is concentrated in the poorest countries
because it's (AIDS) driven by racism and stigma
discrimination and so on," said Dr. Piot. "That
is a global discrimination which has, I believe,
profound, not only economic roots, but also I wouldn't
be surprised--racial roots. I said a few years
ago if AIDS would have happened in the Balkans,
in Kosovo, and it would have affected white men
and women, I'm sure there would have billions coming
in much earlier."
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